Weather Pains Are a Real - and Debilitating

With Hypermobile Ehlers-Danlos syndrome, connective tissue is loose. So when the weather shifts, three things happen at once:

💦 Humidity rises → tissues hold more water → swelling increases

🌡️Barometric pressure drops → natural anti-inflammatory hormones dip → pain sensitivity rises

😰Temperature + moisture → tissues expand and loosen → joints become less stable

In a typical body, that usually doesn't shows until retirement age.

In an hEDS body, it’s like loosening the bolts on an already wobbly structure: joints shift more. muscles overwork to compensate, nerves get irritated. Fatigue creeps in faster and the pain compounds.

Now, add the psychological side.

The brain, naturally over-activated by a structural design that requires 80% more resources than the next person to just stand still, over-thinks every move to avoid flares, which ironically makes things stiffer. 

You push through on good days, then pay for it. Rinse, repeat.

And if you’ve ever been told you’re “overreacting” or “too sensitive,” please don't keep on gaslight yourself for doing the best you can.

What you’re dealing with is largely invisible, poorly understood, and easy for others to dismiss because they are not in your body. You’re not exaggerating - you have a body that responds to variables most people never have to think about until they are well into retirement.

That’s why managing this isn’t about “toughing it out” but reducing how much your body has to compensate:

- stabilise where you can (compression, pacing)

- move gently but consistently

- stay ahead of flares to make them more manageable.

Living with hEDS means your body is constantly under a pressure most people never notice.  You’re not “too sensitive,” dramatic, or overreacting - you’re managing a complex, invisible condition in real time and people around you see nothing but a “normal” person on a random Tuesday.

The good news? You can pace yourself with kindness, move gently and consistently, and learning to stay one step ahead of the flares. 

Be patient with yourself on the hard days. Celebrate the small wins on the better ones.

You’re already doing the hard part by showing up and figuring this out. Your body may be hypermobile, but needing to adapt made adaptability your super power. 😊